Prepare to enter the wild and wooly world of an adult with Aspergers Syndrome, a form of autism characterized by intellignce, quirks, social difficulties and downright strange and oddish behaviours.

People with Aspergers generally are high functioning in everyday life but have great difficulty connecting with others due to the inability to read faces, body language and subtle verbal clues. They also tend to take words literally and have a hard time multi-tasking.

Oversensitivity to touch (clothing has to be soft and often the tags removed), light (do not leave home without the sunglasses), sound (loud noises and noisey places are avoided), taste (many Aspies have quite a limited diet and are frequently very picky eaters) and smells makes the everyday existence more of a challenge.

Fasten your seatbelts and come on in...
To find out more about what Aspergers is..please check out my earliest blog entries

Wednesday, November 7, 2012

Lyme Disease and Lichen Sclerosus, my conclusions




I have an appointment with my family doctor tomorrow. I will present my findings. Here they are:
Lyme Disease (LD) and Lichen Sclerosus (LS) are both rare diseases caused by the same bacteria, Borrelia. Study after medical study shows this to be the case.
I had my first symptoms of LS,  intense itching, at seven years of age.
LS frequently manifests at sites of trauma or injury. My sexual abuse started at five years of age and was at least a few times weekly.
Borrelia is difficult to identify as it "hides" well. It doesn't overtly show up in routine blood work ups, lab results.  One symptom is chronic low WBC, white blood cell, count. Looking over my lab test results, my WBC is consistently normal but very much in the lower end of the spectrum.
My LS has acted up, flared, if you will, throughout my entire life.
I have had a compromised immune system and very frequent illness, far above normal since I can remember.
I have consistently felt "Better" on certain antibiotics and for two weeks after taking them. Then I would start feeling unwell again.
I have had many instances of "unknown" and strange ailments, including neurological symptoms that have baffled doctors. Borrelia causes neurological problems.


There Is treatment available that can eradicat Borrelia. Various strong antibiotics taken over months do work. I will see if my doctor is willing to deal with this and/or refer me to a specialist.
I cannot see one dr. for my LD and chronic sinusitis and another for my LS as They Are Both Linked. Both caused by One organism.
It's time to get the proper care and treatment for what ails me.

4 comments:

Kimea Baby said...

I also have LS and symptoms of Lyme. The Drs are quite negligent in treating these disorders properly. When my last child was born, I asked the Dr to please give me an episiotomy. He ignored me, so I wound up getting 26 stitches. Hence scar tissue. Couldn't have sex for a whole year after that. Now I have LS, and already have had a biopsy. The lesions came back after only a year. Thanks for the info. Yes, I too have had to do a lot of research, and I seem to know a lot more than the Dr will give me credit for. I thank god for the internet, as this is a very embarrassing disorder. I will be trying the Emu oil. I'm just afraid of the estrogen levels. I also have a low white bc. Keep me posted on your progress. Thanks

Amy Murphy said...

Hi Kimea, doctors neglegent? You are absolutely right! I had four different doctors misdiagnose me, with herpes no less, before I went to a dermatologist. My ob/gyn which is the appropriate dr to see, tried me on all the previously known treatments.
I continue to use the clobetasol when there is a flare up. That does seem to help.
My latest new protocol is soaking in a diluted solution of apple cider vinegar. I've read a lot about how this helps non-genital LS. Some day I just ask my feet in warm water and vinegar. Other times, when the itching just won't stop, I put a couple of inches of water in the bathtub and add about 6-8 ounces of apple cider vin. I very closely monitor how my LS affected body parts feel sitting in the tub. If it at all burns, I add more water. I try and sit for twenty minutes or so, then add enough water to fill the tub, as in a normal bath. I do believe it helps!
I've also been reading up about diet. I'm finding that on days I eat spinach (I adore spinach) I'm almost guaranteed a flare up. I've thus eliminated that from my diet.
Those are my updates:) I continue to struggle with the lack of info on this disease. If a disease shrunk a mans penis, millions and billions would be spent searching for cause and cure. Sorry to say.
I wish you the best! I'm so sorry that you suffer from such a disease. Amy

Anonymous said...

I read a comment on some Lichen Sclerosus site or blog saying that food high in oxalates as in spinach, etc. would cause a flare up. So, conclusion was to eat low-oxalic food diet.

Amy Murphy said...

Yes, I continually had flares when I ate spinach. So I eliminated that from my diet. Definitely agree with you!