Prepare to enter the wild and wooly world of an adult with Aspergers Syndrome, a form of autism characterized by intellignce, quirks, social difficulties and downright strange and oddish behaviours.

People with Aspergers generally are high functioning in everyday life but have great difficulty connecting with others due to the inability to read faces, body language and subtle verbal clues. They also tend to take words literally and have a hard time multi-tasking.

Oversensitivity to touch (clothing has to be soft and often the tags removed), light (do not leave home without the sunglasses), sound (loud noises and noisey places are avoided), taste (many Aspies have quite a limited diet and are frequently very picky eaters) and smells makes the everyday existence more of a challenge.

Fasten your seatbelts and come on in...
To find out more about what Aspergers is..please check out my earliest blog entries

Monday, April 3, 2023

Prosopagnosia, Face Blindness, All People Look Alike

 

Face Blindness- if you met a new person today, would you recognize that person if you ran into them again in a different location after a week or two? I probably would not. In my mind, all faces look alike. I have Prosopagnosia which is a neurological disorder whereby I have difficult remembering faces and the names that go along with them. People I meet are easily forgotten unless they have a specific hairstyle of unusual facial feature such as a mole or odd beard.

Family members and those who I have known for years are exempt. Once I know a person for a sustained period of time, I can remember their face. New people, or someone I meet once or twice are readily forgotten. I have had former coworkers and once fellow classmates approach me calling me by name and I had no idea of who they were. Studies have shown that prosopagnosia is common with Autistics. One study stated that approximately 40% of people with Autism have prosopagnosia.

I can sometimes utilize hairstyles like a signatures. If someone has a distinctive hairstyle, it will make it easier for me to recall the person. Likewise, if an individual has a unique birthmark, they are more likely to make a lasting impression in my Aspie brain. I easily remember the woman with yellow eyes, the friend with a mole on her chin, and the favorite friend with the small space between two teeth. The difference, the physical anomaly can be quite small, as in the case of my friend’s mole, but it draws my attention which helps me to create and store the memory of who that person is.

I have embarrassed myself on many occasions by approaching someone and talking to them as if they were someone I knew. They all gave me the standard confused look before I realized that they were not who I thought they were. I have learned to stop approaching people and thinking that I know them. It was a degrading lesson to learn that I had prosopagnosia.

Even now, living 2,000 miles away from my home state, an individual will walk by that reminds me of a someone I knew in Michigan and, for a brief moment, I think it might be them. I have to consciously tell myself that I’m not in Michigan anymore and the stranger that just walked by was not who I thought. This subject seems more complex than when I first started writing about it.

Suffice it to say, I have difficulty recognizing people that I have had little interaction with, as well as misidentifying strangers as people I know. People’s faces are neither attractive nor unattractive, but rather bland canvases wherein only a few have interesting and memorable features.

I think this concept of all faces looking alike dawned on me when I was watching Lord of the Rings. Throughout the movie series, I was unable to tell Merry from Pippin. Thus, even though I loved the movies, I always felt some degree of confusion while watching them. Television shows with an ensemble cast proved to be completely unenjoyable. Unable to distinguish facial characteristics led me to identify people based on hair color or facial hair. I did fine if the show had only one female with long blonde hair, but if there were two, I was unable to tell them apart. Likewise, for a dark-haired male with beard. If there was more than one such male, I was lost. It isn’t fun to watch a show or movie in which you are never sure who is who. Maybe this is one reason that my favorite movies seem to be one central character based or with a small cast, think Castaway or Passengers. Those films are free of confusion.
And heaven forbid if a friend or relative or coworker got a haircut or changed hair color. One of the most dramatic memories that I have stems from the time my therapist, whom I had been seeing weekly for over two years, changed her hair color and style overnight. I remember walking into her office and part of me kept thinking I was in the wrong place. Surely, this was not my therapist even though the office was the same and she was wearing clothing I had seen my therapist wear. In my heart, I felt that my therapist had been replaced and was forever gone. I walked out of that session. It took me some time before I could convince myself that it really was the same therapist just with different hair. [To be fair, my therapist did not just do a haircut and new style. She completely changed the hair color, the style, and she ditched her trademark eyeglasses for contact lens. Basically, everything about her from the neck up, was completely new and unfamiliar.] No, I can’t even laugh or chuckle about that one, and it has been over five years. The confusion that I deal with on a daily basis is sad and astounding.

Multiple studies agree that prosopagnosia is common on the Spectrum. One of the weird aspects is that those of us who have face blindness are often unaware that we have it. It wasn’t until I’d spent four decades with facial confusion before I realized that it wasn’t normal, that it had a name and that it was a common feature in Autism. I just thought everyone struggled to tell people apart.
If you think about it, face blindness really puts a damper on forming and maintaining social and interpersonal relationships. It’s hard to be caring and considerate if your friend frequently looks like a stranger. Absence may make the heart grow fonder but if you cannot easily recall a friend’s face, it is hard to send warm, fuzzy thoughts to them when away.

If making eye contact and looking into someone’s face elicits feelings of confusion, why do it? This is another hardship in trying to build relationships and friendships. If I’m at the store, and my friend waves at me but I don’t recognize her and fail to wave back, the friendship suffers as my pal feels slighted and ignored. (Probably shouldn’t have used waving as an example as I rarely ever use such a dramatic, public, uncomfortable gesture but I think it does illustrate the point well.)

I remember in high school, looking at my classmates in the yearbook. I found no one to be “attractive”. They all looked the same. My schoolmate would swoon over this guy or that and I would just internally be stymied, shaking my head in disbelief and wonder. I could not distinguish what an “attractive physical quality” was.

The inability to remember and distinguish one face from another puts a serious damper on forming and maintaining relationships, for sure.