Prepare to enter the wild and wooly world of an adult with Aspergers Syndrome, a form of autism characterized by intellignce, quirks, social difficulties and downright strange and oddish behaviours.

People with Aspergers generally are high functioning in everyday life but have great difficulty connecting with others due to the inability to read faces, body language and subtle verbal clues. They also tend to take words literally and have a hard time multi-tasking.

Oversensitivity to touch (clothing has to be soft and often the tags removed), light (do not leave home without the sunglasses), sound (loud noises and noisey places are avoided), taste (many Aspies have quite a limited diet and are frequently very picky eaters) and smells makes the everyday existence more of a challenge.

Fasten your seatbelts and come on in...
To find out more about what Aspergers is..please check out my earliest blog entries

Tuesday, February 10, 2015

More Walking & Living with Lyme

Ah, yet another post on my trials with Lyme. Seems the inability to walk well weighs heavily upon my mind. I'm reminded of it Everytime I want to get up and do something. I continue to have pain in my feet and lower legs. Must be neuralgia, nerve pain as the standard pain meds don't touch it.
 I've thought about seeing a neurologist but the biggest problem would actually be trying to walk to the car, drive there and walk in. What a conundrum!
 I'm going to ask someone to bring me an office chair on rollers, from another floor of the house. I'm not sure if that will help my legs or put undo stress on my arms. If I use a chair, will my arms start to experience the pain, stiffness and weakness like my legs? Or are my symptoms only leg related?
 I'm working on getting that handicapped card for my car. And I'm not too proud or embarrassed to use an electric chair if I need to go to the store.
 What would appear slowly staggering through the store or using a wheelchair? I'm going for the helpful electric cart.
 And what would happen...if I simply cannot stand at all? I don't know if my knees would buckle or my body would just fall.
 Worse today than yesterday but yesterday I took my son to his appointment with a fair amount of walking and standing. 
 Today, I've done better. No extraneous events outside the house and only the basics inside. I need as much horizontal time as possible. 
 I have a helper coming over tomorrow. She will assist in my getting things picked up, cleaned and has even agreed to cook a warm, hearty meal😊 Yes, that definitely makes me happy!
  I watched a couple videos on Lymies have trouble walking. I don't feel so bad. The stiff walk is exactly like mine. I even found one whereby the woman said that she was walking just like she did as a child, stooped and feet turned in. She said she was born with hip was I! Ironic.
 Maybe tomorrow I'll wake up better, worse or the same. I honestly have no way of knowing. Judging by previous episodes, this one may take 2-4 weeks to get into remission, normalacy. 
  I'm either very sick and sliding downhill or very much in a healing crisis and getting ready to climb. I can't tell which but I'm leaning toward the latter.
 My legs feel less like my own, less in my control. Hoping that a couple solid days of rest will help.
 I spend time watching old movies, plotting my next venture into getting off the couch so that I get everything done in one trip. The less I'm up, the better I feel. 
  My head is still clear which is an excellent sign and I'm sleeping and eating pretty normal. It just seems to be the leg motor movement that's an issue.
 We will see what tomorrow brings.

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