Prepare to enter the wild and wooly world of an adult with Aspergers Syndrome, a form of autism characterized by intellignce, quirks, social difficulties and downright strange and oddish behaviours.

People with Aspergers generally are high functioning in everyday life but have great difficulty connecting with others due to the inability to read faces, body language and subtle verbal clues. They also tend to take words literally and have a hard time multi-tasking.

Oversensitivity to touch (clothing has to be soft and often the tags removed), light (do not leave home without the sunglasses), sound (loud noises and noisey places are avoided), taste (many Aspies have quite a limited diet and are frequently very picky eaters) and smells makes the everyday existence more of a challenge.

Fasten your seatbelts and come on in...
To find out more about what Aspergers is..please check out my earliest blog entries

Monday, May 28, 2012

Comfort is a Very Thin Line, Daily Life with Aspergers

Finding comfort...a daily struggle. Trying to find the clothes to match the mood, weather and events of the day. Schedules, appointments all need monitoring, writing out on slips of paper on bulletin boards on the outside and inside, as well.
Eating is a ritual of finding the foods that will actually taste "right" for any given meal. Cause lord knows, if it isn't right, the food will have no taste, it won't sync and the body goes hungry for lack of want. Gathering the food everything has to look just so...lettuce without blemishes, burger properly cooked, bread toasted to the correct color and texture, just the right amount of ketchup or butter...making sure the portions are accurate. I tend to eat a little bit of everything in each bite, so I try and put just enough on my plate, everything in equal amounts.
Chores, deciding what needs doing and what I want to do. It's a balancing, juggling guessing game that I play everyday. Watching for those appointments and wagering as to how much time I need to prep and drive to arrive on time, which for me is about five minutes before the actual time. I like a little slack.
The arrival of Younglink on the bus home. I tend to set at least one alarm so that I am awake, alert and looking for the bus. If I am off doing errands or appointments in the afternoon, I constantly watch the clock and have an inner dialog that continually reminds me to be home on time.
Younglink arrives home. Homework, snack, asking him about his day.
Supper and so on.
Comfort is a rare place indeed...a very, very thin line amongst the woods and stones. A narrow pathway that is extremely difficult to find. A small island in the middle of raging seas. Most days are a series of anxiety and stressors. To escape into comfort, I nap, cease activity and try and forget everything that needs doing, hence the alarm clocks. If I get my chores done, or decide that I have worked enough, I can set an alarm, sit or lay down and immerse my self in the comfort of my own self, my mind and wanderings.
I don't know if most people experience comfort on a daily or semi-weekly basis. I have no clue. How would I know? Comfort is a mighty fine rarity that I thoroughly enjoy.

2 comments:

  1. That's a hard concept to explain to other people, eh? I was trying to explain to my doctor that I could never relax and she just didn't get it so I gave up.

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  2. Hi Penny, one thing that my doctor did, that makes sleeping possible and allows me to go to social functions, is being on an anti-anxiety med. Once I experienced absence of anxiety, I realized my entire life had been riddled with high anxiety...no pun intended.
    Yes, it is a very hard concept for peoples to comprehend. Let me put it another way...they have no fricking clue!!! That's one reason I blog...inform, inform, inform:)
    I'm sorry your doc didn't get it. It was years before I could properly convey that I needed medical intervention. I am so glad I pursued the medication avenue...so is my Partner:) and my boys:) and everyone I interact with:)

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